report reviews existing standards, best practices, and governance requirements
needed to establish and run trusted repositories that house health research
data. The objectives of the report are to identify existing standards related
to data repositories; to assess the standards that are currently in place in
selected repositories that house health data; to conduct a gap analysis of
governance standards used in existing repositories.
Updated to version 3 on 11th May 2018:
The first version of Appendix 1 had the word ‘confidential’ on the cover page which had been left in in error during the editing process. This has now been taken out.
Updated to version 2 on 8th May 2018:
was previously called ‘Development of International Standards for Online Repositories’ but
has been changed to ‘Development of Standards for Online Repositories’ as it
better reflects the document and its scope. The first version of the document had
the word ‘confidential’ on the cover page which had been left in in error
during the editing process. This has now been taken out. Finally, Appendix 1
has been added as it is referred to in the document but was not available.