Governance of data access
Through UK cohort studies, EAGDA has carried out research into the current governance of data access to understand:
- the data access systems that have already been developed by studies
- their fitness for purpose in the current push towards increased data sharing
- if there should be coordination between studies on data access.
The final report from June 2015 and its supporting materials set out recommendations to EAGDA funders on how to support good governance methods for access to data within their research communities.
The funders issued a joint response to the report.
EAGDA supports cohort studies and their Data Access Committees (DACs) by promoting good working practices, consistent governance and transparent decision making.
It also wants to increase UK input into international policy discussions on data access.
EAGDA is a partnership between:
Wellcome, Cancer Research UK, the Economic and Social Research Council and the Medical Research Council